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IACR Privacy Policy

PRIVACY STATEMENT OF THE INTERNATIONAL ASSOCIATION OF CANCER REGISTRIES

Your privacy on the Internet is of utmost importance to the International Association OF Cancer Registries (IACR) a professional society dedicated to fostering the aims and activities of cancer registries worldwide.

This privacy statement describes IACR's policy concerning the gathering and sharing of visitors' information through the IACR website, applies to all "IACR sites" operated by IACR including, www.iacr.com.fr and any specific versions and any and all scientific, technical, contractual, programme, portals, news, educational materials, publications, guides, smartphone services, mobile versions, presentations, abstracts, and other information available on the Website, or associated domains hosting IACR and its annual scientific conferences.

What information does IACR collect?

Normal website usage

In general, you can browse the IACR site without telling us who you are or revealing any personal information about yourself. The only information we gather during general browsing is from standard server logs. These include your IP (Internet Protocol) address, domain name, browser type, operating system, and information such as the website that referred you to us, the files you download, the pages you visit, and the dates/times of those visits.

Collection of personally identifiable information

If you register for a newsletter, log on to IACR sites, apply for membership, register for a conference, submit a scientific abstract, request information, provide feedback, participate in a data call, join a discussion group, or join an electronic mailing list, you will be asked to provide organizational and / or personal information such as title, first name and last name, position, name of organization, street name and number, postal code, city, country, e-mail address, telephone number, and website. This information is collected only with your knowledge and permission, and is kept in IACR databases and mailing lists. If you are paying for your IACR membership or conference registration using the web, you may be asked to provide your credit card details. These details are transferred to a secure, online payment service, hosted outside IACR. Credit card information is not retained by IACR. These transactions are done through third-party services and are subject to the service providers′ own policies. Cardholder data may be transferred, processed, and stored outside of EU Member States, and as set forth in the payment service provider′s Privacy Policy, may be subject to disclosure as required by applicable law. IACR is not responsible for the privacy policies or content of third-party sites.

IACR sites with specific requirements to collect personal information may publish a privacy policy specific for that site. In these cases, the site-specific policies will be complementary to this general IACR privacy policy but will give additional details for that particular site.

For certain IACR sites, registering or supplying personal information sets a cookie*. By setting this cookie, IACR will remember your details the next time you visit, so you don′t have to re-enter the information. This helps us to provide you with a better service.

Joining electronic discussion groups may mean that other participants of the discussion group (including non-IACR employees) will see personal information that you have volunteered. For open discussion groups, this information will be public.

What does IACR do with the information it collects?

Normal website usage

The information gathered during general browsing of the “IACR.fr” domain is used to analyse trends and usage of the IACR site and to improve the usefulness of the site. It is not connected with any personal information.

Personally identifiable information

IACR may use the personal information you provide to:

  • Contact you – either in response to a query or suggestion, or to mail newsletters, documents, publications, etc. to you;
  • Confirm your payment and registrations on the site;
  • Obtain payment for purchases through the site (via credit card);
  • Remember your online profile and preferences;
  • Help you quickly find information that is relevant to you based on your interests, and help us create site content most relevant to you;
  • Perform statistical analysis.

Rights of the interested parties – What if I don′t want to provide personal information?

Providing personal information on the IACR site is optional. If you choose not to provide personal information, you can still browse and use the IACR site, but you will not be able to carry out certain actions such as register for a newsletter, a conference or apply for membership. At any time the user can exercise his / her rights including the right to obtain: confirmation of the existence of personal data concerning him and to know its content and origin, verify its accuracy or request its integration or updating or correction; to request cancellation.

Opting out and changing your information

At any time, you can cancel or modify your information by returning to the webpage where you first provided the information and contacting the focal point for that page/IACR department. Where contact details are not provided on the page, you can refer to this page for further information.

Security

We do not sell or share any personally identifiable information volunteered on the IACR site to any third party. Any information provided to IACR by users of the IACR site is held with the utmost care and security and will not be used in ways other than as set forth in this privacy policy, or in any site-specific policies, or in ways to which you have explicitly consented. IACR uses a range of technologies and security measures to protect the information maintained on our systems from loss, misuse, unauthorized access or disclosure, alteration, or destruction.

All our employees who have access to and are associated with the processing of personal data are obliged to respect the confidentiality of official business matters, including personal data.

The IACR site contains links to sites external to its domain. IACR is not responsible for the privacy practices or the content of such sites.

Notification of changes

Changes to this privacy policy will be posted on the IACR homepage at www.IACR.com.fr.

Contact

For questions or queries regarding this privacy policy, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it..

*Cookies
A cookie is a small fragment of data that is sent from a web server to your browser. It is normally used to assign a unique identification to your computer and securely store information such as user IDs, passwords, preferences, and online profiles.

It is stored on the hard drive of your computer. You can choose not to have cookies delivered by IACR sites by changing your browser settings. Different websites can send their own cookies to your computer. To protect your privacy, your browser only allows a website to access the cookies it has already sent you, not the cookies sent by other sites.

IACR Board of Directors

Executive Board:

President:  Joanne Aitken (Australia)
President-Elect:  Charles Wiggins (USA)
Executive Secretary:  Freddie Bray (IARC)
Treasurer:  Rob Verhoeven (the Netherlands)
IACR Secretariat:  Maria Chelle Fernan (IARC)
GICR Representative:  Les Mery (IARC)

Regional Representatives:

Africa:  Karima Bendahhou (Morocco)
 Dr Guy N'Da (AFCRN Representative)
Asia & Near East:  Kyu-Won Jung (South Korea)
   Hiromi Sugiyama (Japan)
   Wenqiang Wei (China)
Central & South America:  Luis Eduardo Bravo (Colombia)
 Marianna de Camargo Cancela (Brazil)
North America:  Donna Turner (Canada) 
   Betsy Kohler (NAACCR Representative) 
Europe:  Marc Maynadie (France)
   Vesna Zadnik (Slovenia)
   Liesbet van Eycken (IACR Representative to ENCR SC)
   Volker Arndt (ENCR Representative)
Oceania:  Sylvie Laumond (New Caledonia)
LOGO1

www.IACR2024.com

Big data in cancer prevention and control: the population-based perspective to tackle rising cancer burden

Beijing, China, 05-07 November 2024

With much thanks to the hosts this year: the National Cancer Registry - Cancer Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College (CICAMS), National Cancer Center, China, the organising committee invite you to join us in November in Beijing.

The plenary topics are the following:

  • National standard, regulation, and law on cancer registry in different countries (important topic)
  • Stage, comorbidities, and other prognostic information in cancer registration
  • Descriptive epidemiology including special populations (e.g., children, adolescents and young adults)
  • Registry innovation, research and health policy
  • Collaboration, innovation and training in registry practice

 


Project E-NNOVATE: Electronic Innovations in Cancer Registration

E-NNOVATE is an ongoing collaborative project to develop the DHIS2-CanReg application linking a cancer registry to electronic medical health records (EMHRs).  This tool will improve the way cancer data is collected, enhancing its value and useability.

This application will be free, and open-sourced, and can be easily adopted by any country. In addition, a network of experts are being trained to support new users following its global roll-out, scheduled for December 2023. Coordinated by IARC-Global Initiative for Cancer Registries, the project is currently and successfully being piloted in Rwanda and the IARC-GICR Caribbean Hub for Cancer Registration

More detaiils in the E-NNovate Project Brochure


Call for Photos and Short Videos

Cancer registry colleagues: share your photos and / or short videos.  We would like to feature these on our website.  We would be eager to receive photos / images and / or videos of: (a) cancer registries and registrars, (b) short messages from registries, (c) registry activities, (d) older / historical photos, and (e) participation in past IACR events / conferences. Click on this link to or simply send them to This email address is being protected from spambots. You need JavaScript enabled to view it.

 


EU General Data Protection Regulation

The European Regulation on the data protection (GDPR) came into force on 25 May 2018. We take reaffirm you our commitment of transparency and the particular attention that we carry in the protection of your personal data.

We invite you to consult IACR's Privacy Policy here.


Using the IACR Registries Portal 

Accurate contact details are essential to ensure good communication with the membership and to have an online presence for the registry.

The registries portal (https://cinportal.iarc.fr) and the IACR website is designed to allow all registries and members to upload and update not only contact details but the registry profiles, descriptions and featured reports and publications.  This is one of the benefits of being a member of the Association:  webpages and publicly-available information about your registry that could be useful for establishing contacts with other registries, institutions and researchers.  

All IACR member-registries have the access and login details. Credentials can also be obtained from the IACR Secretariat.


Check our News Section for announcements on courses, fellowships, publications, newsletters, activities and other IACR announcements

IACR Constitution and Standing Rules

The Association's Constitution and Standing Rules was updated and ratified through the vote of the members in January 2016. 

All members are welcome to read the 2016 IACR Constitution proposal and its Standing Rules

Donations

Registries, institutions or individuals are welcome to contribute to the IACR funds, which aim at strengthening collaboration and exchange in the field of cancer registration between colleagues worldwide.  The donors may contribute to any of the two currenly established funds:

The Calum Muir Memorial Fellowship

The Constance Percy Memorial fund

The online link goes through a secure platform where you will be asked to specify the fellowship fund to donate to.  Receipts are issued at the end of the transaction.  IACR is a registered non-profit association in France.

If you require more information, please email the This email address is being protected from spambots. You need JavaScript enabled to view it.

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