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Impact of the COVID-19 pandemic on population-based cancer registries

Results of the COVID-19 and Cancer Registries Survey now published in the International Journal of Cancer (Open Access)

In May 2020, we sent out a survey on the impact of the pandemic to IACR registry mailing list:  about 750 cancer registries in 160 countries. They survey comprised 33 questions and was administered online using Research Electronic Data Capture (REDCap). There were 230 registries that participated by sending in their response.

The full report and results of the survey is in the virtual issue of the International Journal of Cancer for World Cancer Day 2022 [Link to Article

The report concludes that the impact of COVID-19 on cancer surveillance systems such as cancer registries revealed disparities evident in low-income settings. Strategic preparedness plans suggested were:  long-term governmental support for registries' infrastructure, expansion to electronic medical record reporting, an increase in passive data collection. These actions may limit the impact of the pandemic on current and future cancer patients and assure the sustainability of cancer registries.

The authors again acknowledge the collaboration with of the International Association of Cancer Registries (IACR) and the Global Initiative for Cancer Registry development (GICR) for this investigation and thank all registries for their contribution.

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